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Monthly Archives: October 2013
AIDAN’S RIDE THROUGH THE COUNTRYSIDE
Come join us for this amazing ride through West Virginia to raise money to support national newborn screening for ALD and to help families affected by the disease. I am amazed by the generosity of everyone involved in putting together … Continue reading
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Tagged Aidan's Ride through the countryside, Newborn Screening
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Clinical Trial for GENE THERAPY has begun in Boston
Clinical Trial for GENE THERAPY in Boston has begun Some great news from Bluebird Bio who is responsible for starting the clinical trial on gene therapy for ALD. They are currently recruiting boys affected by ALD to undergo treatment. Very … Continue reading
AIDAN HAS A POSSE! 