Picture 1 Senator Golden, Bobby & Elisa Seeger, Senator Lanza and Assemblywoman Malliotakis We are happy for our victory in passing this from the Senate Health Committee to the Finance Committee. As you can see Bobby’s joy!!
Picture 2 Senator Hannon Chair of the Health Committe, glad we had some time to sepnd with him and discuss ALD and the importance of Newborn Screening. Big Thank you to Senator Hannon for placing this on the Health Committee Agenda and supporting our cause!!
Picture 3 Senator Marty Golden who has been with us from the beginning helping us with sponsoring Aidan’s Bill and making it get to the next level.
Big Thanks to Senator Adams, who I didn’t get a chance to get a picture with, who spoke at the hearing and was the first sponsor on the Aidan’s Bill as well as one of the first people to reach out to me when Aidan was first diagnosed. You are Amazing!!